VNS update 2.0

I’ve been asked to give my two cents on my vns experience thus far. I love it. It gives me peace of mind that I haven’t had before even with medication there was always that underlying fear that you would get used to the current dose and it wouldn’t be effective but you wouldn’t know that until you had a “breakthrough seizure” or unless you had regular testing and who wants to have brain tests done several times a year not to mention EXPENSIVE! VNS therapy is a stimulation therapy known also as “the pacemaker for your brain” it’s also used for people struggling with depression.  The electrical current runs up my Vagus Nerve every 5 min it gives me a 30 second current of energy. The strength of the current is slowly being increased as you would slowly introduce a new medication into your system. The first level I didn’t know what to expect but I got used to it fairly quickly. I will say I’m glad my job doesn’t depend on me talking on the phone all day, making speeches or singing because when this thing goes off I sound robotic. There is a way to “pause” it but it comes with it’s own negative results so I don’t like to do it especially when I first get it turned up. Being I’m only the second person in asheville to have this particular model which reads my heart rate my neurologist is fascinated as am I by the data my device provided at my recent appointment. We think that it might be too sensitive because it’s firing alot and maybe more than it should. When it does it’s a stronger signal and it typically fires when I climb up a big hill and I feel like i’m being smothered and it’s really hard to breathe. It’s a weird feeling since i’ve been blessed to not have asthma or breathing problems it kinda freaks me out. But so far so good and I’m looking forward and hoping for the day where people only know I have epilepsy because I have told them about my VNS not because they have experienced my seizures first hand. Thanks for all your thoughts and prayers. If you have any questions feel free to ask away I love talking about it since it fascinates me 🙂

Published in: on May 2, 2017 at 3:32 am  Comments (1)  
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One CommentLeave a comment

  1. Thanks for the update! I’m glad it’s giving you peace of mind.

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